Kaylee's Home

Exhausted...

Trace is happy to have his sister home

Kianna was with the Shannon's today, as they took her to her soccer tournament. 

Kaylee had a decent night's sleep in between telemetry beeps, which are always a little disturbing. Dr. Zanati came in around 9 am and was happy to hear Kaylee had a good day yesterday. He said if all goes well the rest of the morning then at noon to call and he will discharge her to home.

Once home we should be getting a call from Dr. Buatti, the radiation oncologist to schedule her surgery. She also needs to follow up with the ophthalmologist to complete the visual field defect evaluation and with neurosurgery in 6 weeks.

The physical therapist came by and took Kaylee on the stairs for the first time. She did a flight with SBA and then took a walk.

Kaylee was able to participate in her "My Faith" Sunday school class at church. They called and put her on speaker at the beginning of the class. She was pretty tired by the end of it. It was a lot of stimulation and her headache increased by the end. It was a good discussion though and touched on having faith when bad things happen to us, which was very appropriate.

I woke up a little angry at God today and had a good cry after the Sunday school class. Trevor posted on Facebook that Kaylee is going home today and people are posting, "congrats", "how exciting", and "Praise God". I guess I'm not excited. I'm nervous. She was on an IV yesterday, so now there is pressure again to keep her hydrated. She still doesn't have much of an appetite, so we still have to remind her to eat. She is on constant meds throughout the day so she can function and there is always the risk of another bleed...

Kaylee has been my only focus for the past week and now at home I am "mom" to three kids, not just one. I'm not sure I'm ready to multi-task yet. I'm scared. Our house will have a lot more noise and stimulation than she has been dealing with at the hospital. I'm not sure how she'll handle it, as she still sleeps most the time. I have a lot of fears and uncertainty, which I choose to give to God.

Instead of focusing on my fears, I choose to be thankful for the following:

• Kaylee is alive and without any neurological deficits. This is HUGE.
• God gave me wisdom to call the "on call" doctor last Saturday evening.
• God gave the "on call" doctor wisdom to send us to the ER.
• God gave the ER doctor wisdom to order a spinal tap and CT scan, which found her brain hemorrhage.
• God got Kaylee back to Cedar Rapids for medical care vs being stuck in AZ.
• And much, much more...

Kaylee did make it home today, but it wasn't easy for her. She was exhausted and had a bad headache by the time we got there. Regardless, she's home and we are happy to all be together again. I love the picture of Rizzo lying on her while she rested. He missed her too!