JTAA Rec Soccer

 

Kianna has been missing soccer since she stopped playing for Rise FC. Her friend, Emma, told her about a coed recreational soccer league for High Schoolers. Kianna joined the team and ended up playing against some of her old Rise teammates. She was put in the goalie box for the last three games, as she was deemed the best goalie. It was a new position for her. She really enjoyed playing soccer again and it helped motivate her to get back into shape. We're very proud of her hard work!

Sue's Illness

 

It is with a broken heart that I share these pictures and the following devastating news. On April 20th, Sue decided to go to the doctor because her stomach had been bothering her for a few weeks. The doctor called her at 10 pm and told her to get to the emergency room immediately as her labs came back and weren't good. They ran more tests trying to figure out the problem and decided it was her gallbladder.

They removed her gallbladder on April 22nd and observed that her liver didn't "look" right. They said they wanted to do a liver biopsy, however, it took the back burner as her kidney levels started to skyrocket. After 9 days in the hospital, they decided to start her on dialysis since her kidneys were failing.

Unfortunately, her liver just kept getting worse, leading them to do the liver biopsy. Well the results came back on May 5th that she has amyloidosis, a rare disease that causes abnormally shaped proteins to deposit in the liver, kidneys and heart. We knew for sure it was in her liver, but weren't sure if it was in her heart or kidneys.

As a result, they ordered an echocardiogram, which thankfully showed normal heart function for her age. They ordered a kidney biopsy and a bone marrow biopsy to see if the amyloids were in the those organs. Unfortunately, we found out that the amyloids are in her kidneys, which means she will continue with dialysis indefinitely. On May15th, she was diagnosed with Multiple Myeloma, which is cancer of the plasma cells. The cancer is in her bone marrow and is the cause of the amyloidosis. The doctor said without treatment she isn't expected to last more than a week as her liver is failing. 

They consulted with Mayo Clinic and started her on chemotherapy that night. The chemotherapy seems to be helping, if even just a little bit. She has an appointment with the Mayo Clinic on May 30th. Her future looks bleak. She's been confused and overwhelmed by this all. She is very weak. We are scared and devastated by this news. We don't want her to suffer. We are praying like crazy for God to heal her if that be his will. 

In the meantime, my dad has been her constant. He has been by her side from 8 am to 9 pm. Dave and Lana have been amazing. Debi and Dane are there now. I was there, May 1st-6th and plan to return May 21st to 28th. Dave and Darla have been there. Scott, Melissa, Zach, Cody, Katie, Libby, Blake, and Erika have been there. Lynne, Jill, Tom, Jane, Rod and Jada have been. She is so very loved and our hearts are breaking...

Trace's 8th Grade Dance

 

Trace went to his first dance tonight with a bunch of his friends. He had a great time hanging out with friends and being silly.

Graduation Sunday

Today the seniors were honored at our church. I definitely shed some tears. Kaylee has been so adaptable, as we have switched churches three times since moving to Florida. We started off at Calvary Church, which was great, except for the youth group and how they handled COVID. So, we switched to Family Church Jupiter, which was fine, but small. So after we went on the mission trip last summer to the Dominican Republic, we decided to switch to the Gardens campus, as it is much bigger and Trace and Kianna had each made some friends there. Kaylee has continued to serve in the kids ministry at the Jupiter campus once or twice per month, but attends the services and youth group at the Gardens campus. She has made some new friends, as she always does. We're so proud of our Kiki Bear. 

Jack Johnson Concert

 

When we were first dating, Trevor made me a mixed CD before I left on my month long trip to Asia. It was filled with songs that reminded him of me. There were several Jack Johnson songs on there, one of them being "Bubble Toes". It was a great night listening to some of our favorite songs. 

We doubled with Stacie and Patrick to the outdoor concert called Sun Fest in Downtown West Palm. Kaylee happened to be there too with her friend, Izzy. It was a gorgeous night and very special for Trevor and I. 

Basketball Awards Ceremony

 

Kaylee was give the Hustle Award tonight. Things didn't always go her way, but she always gave 100%. We're so proud of her hard work and never giving up.

Grad Bash

 

Kaylee went with Izzy, Olivia, Bella and Camryn to Grad Bash. Grad Bash is when the Universal Studios shuts down for High School Seniors from 4 pm to 2 am. The school buses the kids to and from the park. Kaylee had a lot of fun with her friends! What a fun event!